As we drive home after another great week at the TMA’s family camp, I can not begin to express how grateful I am for the camp experience. Family Camp is a magical place. My daughters love all the camp activities. Boating, fishing, arts and crafts, swimming, wood shop, music... The list keeps going. They see camp as a place for nonstop fun, and my husband and I love to experience that with them. For me, the amazing thing about camp is the knowledge I gain. When your child has a rare disease, there are tons of unknowns. Camp provides a chance to learn from other families and the medical professionals that attend camp. There is something so amazing about being able to sit down at dinner and talk to another family who knows exactly what it is like to balance daily life and endless doctors appointments. I cannot even begin to explain how amazing the doctors and nurses are that attend camp. They lead educational sessions every afternoon for the parents. I love that in these s
My journey in learning about my daughter's rare autoimmune disease. I'm not a doctor and have no medical training. This is just the information that I have learned as a mom. Be sure to talk to your doctor about your medical questions and concerns.