I am not going to lie, I was nervous about getting a second opinion regarding my daughter's illness. I love her team of doctors. They have helped us so much, but I had some lingering questions that were not getting answered. However, seeking a second opinion felt like I was "cheating" on our doctors. Would they be mad? Would they be offended? Ugh, the guilt! Finally, I decided hurt feelings or not, I needed to do this for my daughter. In the end, I was VERY glad we got that second opinion. We gathered some valuable information. My daughter's original team of doctors were amazing and even agreed to collaborate with the second opinion team. I'm glad that I listened to my instincts and ignored my "need to make everyone happy" guilt. Here's some things I learned through the process: 1. Before even making the call to schedule a second opinion, start gathering all your medical records. 2. Request CD copies of your child's MRI scans.
My journey in learning about my daughter's rare autoimmune disease. I'm not a doctor and have no medical training. This is just the information that I have learned as a mom. Be sure to talk to your doctor about your medical questions and concerns.