Part of my daughter's treatment for her autoimmune disease includes infusions at the hospital. She receives monthly infusions of a blood product called IVIG, and every few months she does an infusion of an immune suppression medication called Rituxan. Infusion day can be long and boring, but we are thankful for treatments that seem to be helping. We've been doing this process for over a year now, so we seem to have a good system in place. 1. To make an infusion go smoothly, it is best to prepare the day before. The most important thing is hydration. Get that water bottle out! Her infusions are given by IV, and a well hydrated body makes it much easier to get an IV in place. https://pxhere.com/en/photo/1434971 2. Pack a bag to keep your kiddo busy. Sitting during the infusion can be really boring. My daughter's infusion sometimes take 6 or more hours. Sometimes she falls asleep, but not always. We bring a bag with homework (...
My journey in learning about my daughter's rare autoimmune disease. I'm not a doctor and have no medical training. This is just the information that I have learned as a mom. Be sure to talk to your doctor about your medical questions and concerns.